I was up at 4:30 a.m. this morning and at the hospital
by 7:30 a.m., but didn’t get to spend much time with my luv because the day was
ate up with appointments to discuss financial arrangements for everything the
docs want to do that we simply cannot afford: it all sounds good and the docs
feel good when they are telling it to us, but most of it is out of our reach
unless we can tap financial resources to pay for all of it. I talked with the
hospital social worker twice today – the first time she was not really
understanding what we are dealing with and was kinda talking down to me like I
was a spoiled simpleton telling me, “I deal with people every day/all day who really
have nothing – zero – you have resources to draw from …”; I pretty much tuned
her out at that point. It was clear she was ignorant of the grand scope and
severity of the situation. But when I spoke with her the second time she was a little
more compassionate and had been schooled by her co-worker as to what we are
actually dealing with … and ended up in tears while going over “the plan” and
sheaves of financial resources with me (pancreatitis
is not something that goes away short of an honest-to-God miracle, and it
eventually leads to death: it is a constant in-and-out of the hospital wasting
disease that, unless Elohim favors Hubs, will rack up millions of dollars in
medical care before he passes into glory). We don’t have millions of
dollars. She was so repentant of her previous behavior, I actually felt sorry
for her, and ended up soothing her!
Hubs has passed the critical stage this morning
and the hospital staff inserted a feeding tube and moved him upstairs this
afternoon before I left to come home. He will be kept a bit longer to get him
started on a supplemental liquid diet in hopes of getting the pancreas well
enough to get in there and drain those cysts
don’t know what else will happen, but
that much I do know because it
was stated to us this morning. They will also be keeping him to monitor how his
body reacts to the tube feeding. Then when it is time to release him … again …
I will be schooled in how to do the tube feeding at home for home care; it is
not a forever thing, but probably for 6 to 8 weeks to calm his pancreas down
enough to hopefully get the surgery he needs.
Then when I got home and collected the mail I
whooped for joy when I read this letter that said: ((((APPROVED)))) This is a
HUGE load off our shoulders …
Doing the happy dance :-D
